Saturday, February 9, 2013

The Day Before the Day Before the MRI

I love reading all the comments! Thanks for your support. It's so good to see other survivors post their stories. 

I've been very busy with the craziness at my job, so I've neglected my photo updates.  I took this photo of Ted a week ago at one of our favorite walking locations.  The sun was shining, a rare thing around here.   The little posts in the background are part of a re-foresting project.  As you can see, the dogs are intently sniffing the grass.  I assume they are trying to ascertain the name, rank and serial numbers of other four legged creatures who have dared to share their ground.  

Ted's next MRI is Monday morning.  After almost seven years of this you would think there would be no fear, but until doctors can find a cure for GBMs, I will always be nervous.  Over time, the amount I worry has changed.  In the beginning, I worried every day until the next MRI, which was on a month to month basis for about a year.  Over the years and the increasing spans of time between his MRIs, I've learned not to worry until the day of the MRI.  But about a year ago, we shifted from MRIs every four months to every six months.  Now I start stressing over it about month five, and by stressing I don't mean on a daily basis, but if he sneezes two days in a row and his energy levels are low or some other abnormal thing happens, the worrier in me wants shove him in the car and take him to the imaging center as soon as possible and get the MRI over with! He of course doesn't worry like this, which is what keeps me level headed.  I suppose if we are lucky enough to have more time and to continue with the six month routine, I will eventually only worry the day of his MRI again.  I know we aren't the Lone Ranger in this and that many of you out there deeply understand the pain of this routine. For those of you in the early stages of this nightmare, living with daily fear, I wish I had words of wisdom for you.  Just know that my heart goes out to all of you and that if you are  fortunate enough to have more time, it does get better. I'll definitely post when we get our results.     


  1. Beautifully written, Katy. Will be thinking of you guys. Jess

  2. Thanks for this great site. I am dealing with this cancer now which we found in November. Survivor stories help me keep pushing forward to be here years from now.


  3. Very nicely put. I totally understand. I worry about my husband every day. He was diagnosed with stage 3 anaplastic astrocytoma over 6 years ago. His next MRI is on Monday. He is basically symptom free now, but since the original diagnosis was 3-5 years, sometimes I think that maybe this is the one that will show a change. His doctor has treated someone with the same diagnosis for 7-8 years and has heard of someone living 10 years. Fortunately, my husband is very competitive, so his goal is to beat the 10 years.


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