How did we know Ted had a brain tumor?
These pages were written shortly after Ted's surgery and treatment, so some of the information might sound out of date. He is no longer taking chemo or radiation and has not taken any chemo for three years.
Personality changes
Three to four years prior to his diagnosis, I noticed personality changes. I once asked him what he had done with my real husband. He just shrugged. I asked him if he was depressed, but he insisted he wasn't. He got fired, not once, but three times in a two year period. He decided it was in his right to let his employers know what he really thought of them. His filter was gone. His brain was swelling and the cancer was invading his right frontal lobe, the lobe responsible for emotions.
These pages were written shortly after Ted's surgery and treatment, so some of the information might sound out of date. He is no longer taking chemo or radiation and has not taken any chemo for three years.
Personality changes
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Ted in 2004, two years prior to diagnosis |
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Mt. St. HelensOne year prior to diagnosis in 2005
The headache to end all headaches
May 29, 2006
We drove to an urgent care facility and the on call doctor told us to run, not walk to Legacy Salmon Creek ER. Between Ted's three week long headache and personality changes, the doctor knew something was seriously wrong. He was just one of several medical professionals who helped save Ted's life. He told us to make sure the ER docs didn't let us go with the standard treatment of a pain medication and no further investigation. He told us to demand a CT scan. He said to make sure they knew there was a personality change. I did what he told me and six hours later, we sat in the ER, Ted on a gurney, me by his side, waiting for the life altering results.
Alternate Universe
A pretty blond doctor, something you'd expect on a TV show, threw open the flimsy curtain that separated us from our old world and what was to become life in an alternate universe and said,"You have a brain tumor. A Neuro consult is on the way down." She said it with such casualness, Ted thought she was joking. She confirmed what I already knew.
![]() The Neurosurgeon, Dr. Ashok, Modha, seen in the picture to the right, came down and spoke with us before Ted's MRI. He had style and grace. He was East Indian and had studied in Canada. His calm and gentle manner reassured us in an extremely difficult time. Even after the MRI reported that it was, what he termed, probably a slow growing tumor about the size of an orange that had completely compressed and consumed his right frontal lobe, he continued to be positive and caring.
In the years since, we've been told by brain tumor experts from San Francisco to Boston, that Ted's longevity likely has something to do with an extremely skilled surgeon. We can't thank Dr. Modha enough.
Frontline of treatment
Drugs
Ted was immediately put on Dexamethasone
to ease the swelling in his brain. They couldn't operate until the swelling went down. The headache disappeared but the nightmare
began. He did not sleep or eat well. He was wired. He could barely sit still or lie down. Closing his eyes was difficult. He was hypersensitive to light, sound, smells, physical movements, and his taste
buds had pretty much given up and died. He kept telling people he missed my spicy Mediterranean food.
Dr. Modha was concerned about getting the tumor out
and doing the biopsy as quickly as possible, but the drugs needed to reduce the swelling. It was two weeks before they could operate. Once Modha was able to remove the tumor, he said it was likely Ted wouldn't have survived another two weeks.
Surgery
June 13, 2006
:He was prepped, mapped, poked, and knocked out. I stood in the hallway and watched them wheel him into surgery. I have never felt more alone. Tears filled my eyes. My voice was gone. I thought I'd never see him again. He was wild eyed and ready to get it over with.
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